ConsentGuardian GeneGuardian: Informing and Protecting Genomic Data Decisions The Current State of ConsentBiomedical research has long relied on broad consent models where participants provide a one-time, open-ended consent for their data to be used across a wide array of future studies.
Commentary Genomic Data Privacy in the Era of Decentralised Systems Genomic data privacy concerns addressed by DLT. Benefits: data ownership control, improved security, encrypted data sharing. Challenges: user adoption, user-friendliness